Galaxy

11 Oct 2016

Young teenager with rare bent neck gets life-changing surgery

A 13-year-old schoolboy struck with a rare condition which forced him to live with his head hanging to one side has had his life transformed following a major operation.
Mahendra Ahirwar's neck muscles are so weak his head hung at a 180-degree angle, leaving him requiring help to carry out basic day-to-day tasks.
The world was shocked when images of how his condition have an impact on his life emerged.
His story compelled a complete stranger, Julie Jones, from Liverpool, to help raise £12,000 for the operation - and the operation has been a huge success.
His dad Mukesh said: "It's a miracle. He looks great. His neck is straight; and his life is so very different.
"He’s in a good place. It was heart breaking to see him before. We were on the brink of losing him.
"When his neck was bent he was too shy to speak but now he feels like a normal person and we can see his confidence levels growing. He is very happy now."
Before the operation, his mum Sumitra, 36, said that it would be better if her son died should the operation not be a success.
"I can't see Mahendra suffer anymore," she said.
"Watching his life is devastating. He cannot do anything by himself.
"He just sits in a corner of the room all day. It's no life.
"I have to carry him like a baby everywhere, how will I carry him when he grows older? If doctors cannot treat my son it is better that God takes him."
Thanks to the operation being a success, Mahendra can now go to school - alongside his siblings Surendra, 11, and 14-year-old Manisha.

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