Rahma Haruna is a bright, happy girl, despite being practically limbless and in constant pain.
The 19-year-old, from Kano, Nigeria, was born a healthy baby but at six months old her growth came to a sudden halt and she stopped hitting key development milestones.
"She started with a fever and that was it. Then stomach pains.
Then her body parts like hands and legs. She cannot use any if the ache strikes."
Rahma's family do their best to provide her with a fulfilling life and transport her around the village in a plastic bowl.
She is particularly close to her 10-year-old brother Fahad, who dotes on his older sister.
"I feel happy whenever I see people helping her. I like taking to our relatives. She feels happy when we visit them."
The cause of Rahma's condition is unknown, despite her family working hard to secure a diagnosis.
Rahma's father, Hussaini, said: "I've spent 15 years searching for the cure. I farm, go to the market and lots more looking for money to pay for her bills.
Doctors have been baffled by Rahma's condition and some have even put it down to the teenager being struck down by a jinn - a supernatural being in Islamic mythology.
Rahma's family hope to get the attention of a charity or medical specialist who can help with the teen's daily pain.
"He snapped our photo and it was published in the local papers. Since then we have been getting help from people."
And despite the daily challenges Rahma faces, the brave teenager is full of hope for her future and dreams of opening her own shop.
She said: "I thank God in everything I do.
"I want to start a business. A grocery store and anything people buy, that is what I want."
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